People affected by primary biliary cholangitis (PBC) are gaining new opportunities for connection, education and support this September as global organizations unite for PBC Awareness Month. The worldwide campaign, which culminates in International PBC Day on September 14, emphasizes the theme “You Are Not Alone,” underscoring the importance of community for those living with this rare autoimmune liver disease.
In the United States, the Friends of the PBC Foundation will host its first U.S. PBC Patient Conference Sept. 19-21 in Chicago. Patients, caregivers, healthcare professionals and advocates will gather to share experiences, discuss treatment advances, and learn strategies to manage life with PBC. The nonprofit will also highlight patient stories, lead virtual discussions and release educational materials throughout the month to ensure awareness reaches beyond the conference walls.
Across the Atlantic, the PBC Foundation is organizing its annual Patient Conference Sept. 13-14 in Edinburgh, Scotland, with both in-person and virtual attendance. The program will feature clinical updates, sessions on test result interpretation, family-focused workshops and advice on nutrition and self-care.
Read more about helpful links and resources for PBC
The Canadian PBC Society is encouraging people to take part in daily social media campaigns under the theme “PBC Voices.” Activities include sharing fact sheets, wellness tips and entering daily prize draws aimed at promoting physical, emotional and mental health.
Beyond PBC-specific organizations, the American Liver Foundation is inviting patients and supporters to join Liver Life Walks across the country. These events provide opportunities for individuals affected by liver disease, including PBC, to come together in solidarity while raising awareness and funds for patient resources.
For patients, these initiatives offer greater visibility for their condition, more resources to navigate care, and stronger bonds with others who understand their experience. As L. Marie Asad, president of the Friends of the PBC Foundation, explained, “The two days I remember most on my PBC journey are the day I was diagnosed, and the day I met someone else living with this disease. Connection changes everything.” This September, the message is clear: No one with PBC should feel alone.
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