Advocacy

I am so tired of being sick, and sick of being tired. 

While I had an incredible time in Edinburgh, it has been a bit of a recovery process for me.

Here’s the explanation I’ve found works best.

Last year I made my first visit to Scotland, and I feel like I’ve learned a few things to make international travel with PBC a little easier.

I have found that taking each day as it comes is often easier than being overwhelmed by the big picture.

Spreading awareness on PBC and how it affects patients can lead to understanding, research and clinical trials.

Making connections with others who have primary biliary cholangitis (PBC) saved my life in 2020 after my diagnosis. That time in my life was extraordinarily difficult. Not only did I find out I have a rare autoimmune disease affecting my liver, but I was also working on the front lines of a global respiratory pandemic […]

Beginning my PBC journey completely changed my life, and I look forward to the future and what’s to come for my advocacy work.

Brain fog is one of the most difficult side effects of primary biliary cholangitis, and it makes cognitive function and thinking quite strenuous.

I’ve had problems in the past getting ursodiol, the first-line treatment for my primary biliary cholangitis.