How ‘spoon theory’ can help people with PBC explain fatigue
This metaphor makes invisible symptoms visible and helps others understand that energy is finite.
This metaphor makes invisible symptoms visible and helps others understand that energy is finite.
How the disease moves from stage to stage depends on the individual.
Although the change from “cirrhosis” to “cholangitis” may seem small, it represents decades of improved understanding.
Starting a new medication for PBC is an important step, but you don’t have to navigate it alone.
A disability doesn’t have to be visible or constant to impact how someone functions.
It is always your right to seek a second medical opinion.
Chronic inflammation, vitamin D deficiency and more can lead to osteoporosis in people with PBC.
Liver scaring means your body produces lower levels of albumin, a protein that helps keep fluid inside blood vessels.
You can’t fully be there for your kids if you’re not taking care of yourself.
AMAs are one of the key diagnostic markers for PBC.